End-of-Life Planning in the Modern Era - An Overview

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In our journey through life, we often shy away from discussing its inevitable conclusion. Yet, as we navigate the complexities of modern healthcare and end-of-life options, it's crucial to have open, honest conversations about our wishes and values.

 

The Evolution of Death & Dying

Serene lake with trees and mist

Gone are the days when a serious heart attack or advanced cancer meant certain, swift death. Medical advancements have dramatically extended our lifespans and treatment options. As Dr. Blair Bigham notes in his book "Death Interrupted," we've entered an era of medicalized dying where "people, and their doctors, would forget how to die”.

This new reality brings both blessings and challenges. While we celebrate life-saving treatments, we must also grapple with complex decisions about quality of life and the nature of a "good death."

The Importance of Advance Care Planning

Planning for end-of-life care isn't about hastening death—it's about ensuring our final chapter aligns with our values and wishes. Here are key steps to consider:

  1. Have courageous conversations with loved ones about your preferences.

  2. Complete necessary paperwork, including:

  3. Plan your funeral and write your will.

Remember, these discussions aren't morbid—they're acts of love and responsibility towards yourself and your family.

 

The Medical Revolution & Its Impact on End-of-Life Care

Person of colour lying on hospital bed being treated by two doctors

The rapid advancement of medical technology since the 1950s has dramatically changed how we approach death and dying. From open-heart surgeries to cancer treatments, we now have an unprecedented ability to prolong life. However, this has also led to challenges in knowing when to stop treatment and allow natural death to occur.

The Baby Boomer Effect

The Baby Boomer generation has been instrumental in changing the landscape of healthcare, including end-of-life care. Their advocacy has led to significant improvements in patient autonomy and choice, from maternity care to end-of-life options.

The Rise of Medicalized Dying

Dr. Atul Gawande, in his book "The Checklist Manifesto," states, "We now have more than thirteen thousand diseases, syndromes, or types of injury, and clinicians have more than six thousand drugs and four thousand treatments to cure or extend our lives". This abundance of medical options has created a new paradigm where death is often seen as a failure rather than a natural part of life.

The Importance of Quality of Life

With all these medical advancements, it's crucial to remember that quantity of life doesn't always equate to quality of life. Many people don't want life at all costs. It's essential to communicate your wishes clearly to your healthcare providers and loved ones.

The Role of Palliative Care

Palliative care, which focuses on pain and symptom management, should be a part of everyone's care journey, regardless of whether they are still receiving treatments or considering other end-of-life options. It can greatly improve quality of life and help navigate the complex landscape of modern healthcare.

 

An Overview of Medical Assistance in Dying (MAiD)

Empty wheelchair on sand next to the ocean

As our society evolves, so do our options for end-of-life care. One such option that has gained legal status in Canada is Medical Assistance in Dying (MAiD). It's important to understand what MAiD is, who it's for, and how it fits into the broader context of end-of-life planning.

What is MAiD?

MAiD is a legal option in Canada for eligible adults experiencing grievous and irremediable suffering. It's available to capable adults over 18 who are receiving health benefits in Canada.

Key Points About MAiD

  • MAiD is patient-led and requires careful consideration.

  • There are strict safeguards to prevent coercion or abuse.

  • The process is designed to be peaceful and painless.

  • There are two paths: when natural death is reasonably foreseeable and when it is not.

Dispelling Myths About MAiD

In the age of social media, misinformation about MAiD abounds. It's critical to rely on factual information from reputable sources. Some key points to remember:

  • No one can be forced to request MAiD.

  • Vulnerable populations are protected by stringent safeguards.

  • The procedure is not painful and is carried out with utmost care and dignity.

MAiD as Part of Comprehensive Planning

It's crucial not to rely solely on MAiD as an end-of-life plan. Unexpected complications or rapid disease progression can disrupt even the best-laid plans. Therefore, it's essential to have comprehensive advance care planning in place, including considerations for palliative care and other end-of-life options.

Remember, MAiD is not an appropriate choice for everyone. It should be considered carefully as part of a broader end-of-life plan that aligns with your values, beliefs, and wishes.

Related reading: Understanding Medical Assistance in Dying in BC - The Details

 

Embracing Life While Planning for Death

Silhouettes of two people sitting on chairs enjoying a sunset

Planning for end-of-life care isn't about giving up—it's about taking control. By facing these difficult conversations head-on, we can ensure that our final moments reflect our values and wishes. Whether you choose a natural death, palliative care, or other options, the key is to make informed decisions that align with your beliefs and desires.

As we navigate this deeply personal journey, let's approach it with courage, compassion, and open hearts. After all, how we face death is intimately connected to how we've lived our lives.

 
 
 

Patient Pathways provides one-on-one support in helping patients access BC healthcare services and determine Advance Healthcare Directives. See our Services and Fees.

Connie Jorsvik

Connie Jorsvik is an educator, author, public speaker, independent healthcare navigator and patient advocate. Since 2011, she and her team have passionately supported hundreds of patients and families journeying through complex illness, end of life, and planning ahead.

https://patientpathways.ca/
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Understanding Your Choice at End of Life